This morning, I got up around 6:30 to the sound of my father puttering around upstairs and Reid talking to himself in his sleep. We rolled out of bed and headed upstairs for some much needed coffee. Around 8:00, I remembered that there was a Thanksgiving Mass at 8:30 that my mom and I wanted to go to with Reid. We got dressed and were there on time! It was a nice mass, Father Kech talked about "Thanks" Giving, and remined us that we need to give thanks for what we have and for what others do for us. He also reminded us not to get hung up on the negative, which is something I have been doing a lot lately.
My mom for example, I get angry that she is going through dialysis, is blind and has had a stroke and heart attack.... I hate that she can't visit for more than a weekend because she has to be home for dialysis. I was reminded today that I should be thankful that she is here and not dwell on the other stuff, and most days I am able to that, but there are other days where it weighs heavily on my mind.
Tuesday I went to Legacy Good Samaratin Hospital with my parents to meet with a team for the Organ Transplant Team and I took the first step in seeing if I am a match for a kidney for my mom who is in renal failure. I have been struggling with the decision to be a live donor or not, to give a kidney to my mom without worrying about the future or the what if's. I worry that diabetes is hereditary, and what if down the road I get diabetes and my only kidney shuts down, then what? What if Reid get's diabetes and he needs a Kideny? How do you choose between your mom and your child? Why do I have to choose??? Is it really a choice?
At the meeting, I learned some very interesting information. A live donation (an organ from a living person as opposed to a deceased person) is better for a few reasons:
1) the kidney last twice as long
2) my parents could schedule the transplant and not wait around for a phone call saying they have found a donor
3) the donor (if they are living) usually lives longer than people who don't donate (because they have been examined top to bottom and bottom to top- and have been deamed "healthy")
4)if my mom receives a kidney from a live donor, then it lets a kidney from a deceased donor go to someone who does not have anyone to donate.
5) My mom could have a kidney transplant in less than a year!!!
I also learned that if I am a match and I donate a kidney and need a kidney in the future, I would move to the top of the transplant list because I was a donor. I also learned that a freak accident that injured my one kidney could be fatal...again with the "what if's". The recovery time for kidney donation is 6-8 weeks (or longer) because it is a MAJOR abdominal surgery. How will this affect the possibility of getting pregnant again? Who will take care of Reid while I am recovering and Rudd is at work?
The team also mentioned a paired donation, which would allow me to donate a kidney to someone if I am not a match for my mom, and then someone would donate a kidney to my mom. More food for thought on that topic!!!
The next step for my mom is to meet with more doctors in a month. They will go over her medical records and identify her blood type to find a match. If her and i are match, I'll under go more tests to see how good of a match I really am.
The next step for me (and my family- because I understand that this decision will impact Rudd and Reid too) is to do some major soul searching, have lengthy discussions with Rudd and find out if I am a match for my mom...
Thankfull, MOST of the transplant will be paid for through my parent's insurance, including the donor's medical bills- everything except the donors time off of work. That was a huge relief! Knowing my parents would not be stuck with thousands of dollars of medical bills! There will be lots of post transplant medications my mom will have to be on for the rest of her life that can be pretty expensive though.
But today, I am trying not to worry about the what if's or the struggles my family has been through. Today I am Thankful that Reid get's to spend another ThanksGiving with his Grammie and Papa, I am thankful that I get to spend another ThanksGiving with my parents, Rudd and Reid. I am even thankful for my father looking over my shoulder as I salt and pepper the turkey, stuff the turkey, and baste the turkey. I am Thankful that Chelsea (Reid's cousing) came to spend ThanksGiving with us! I have a lot to be thankful for!
Happy Thanks Giving!